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What to do when pulmonologist is passive?

MAC & Bronchiectasis | Last Active: 1 hour ago | Replies (38)

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Profile picture for bayarea58 @bayarea58

@sueinmn absolutely. It is incredible how few pulmonologists have the treatment knowledge and experience to treat BE well, even where they had the wherewithal to include in differential. The treating WELL part is really lagging. As someone who is part of a very large HMO, I had to go elsewhere for that expertise (and pay out of pocket) and I can tell you that the difference in expertise between my very large HMO and the designated care centers for BE/NTM (I have been to two) is significant! My experience has made me a huge advocate for the designated care centers.

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Replies to "@sueinmn absolutely. It is incredible how few pulmonologists have the treatment knowledge and experience to treat..."

@bayarea58

I’m also in the Bay Area of San Francisco and am being treated at a large HMO that starts with a K. Could I be in touch with you confidentially about your experience?