← Return to Living with Neuropathy - Welcome to the group
DiscussionLiving with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Replies to "I have a diagnosis of axonal polyradiculoneuropathy, based on EMG tests and office tests. It's not..."
Hi @jlind, I would like to add my welcome to Connect along with Ethan @ethanmcconkey and other members. I'm wondering if we should move your discussion into the following group where you can meet other members with similar symptoms where your post will have more visibility.
Groups > Neuropathy > Living with Neuropathy - Welcome to the group
-- https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/
I'm tagging @kevinking and @llhodnett who have discussed axonal polyneuropathy in a post and may have some suggestions. Also, I found the following publication that may be helpful.
European Federation of Neurological Societies/Peripheral Nerve Society Guideline on management of chronic inflammatory demyelinating polyradiculoneuropathy: Report of a joint task force of the European Federation of Neurological Societies and the Peripheral Nerve Society — First Revision
-- https://onlinelibrary.wiley.com/doi/full/10.1111/j.1468-1331.2009.02930.x
I'm hoping you can share your symptoms and any treatments that you have found helpful as Ethan suggests. That will help other members with similar symptoms share what they have found helpful.
Hi @jlind it must be relieving to not take any medications at this time.
I wanted to share this link in hopes it could be helpful: https://www.patientslikeme.com/conditions/chronic-idiopathic-axonal-polyneuropathy
I also wanted to introduce you to other connect members @johnbishop, @artscaping and @mlmcg as they have experience with different types of peripheral neuropathy.
@jlind How have you been feeling? What are your symptoms?