← Return to Living with Neuropathy - Welcome to the group

Discussion

Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 5 days ago | Replies (5972)

Comment receiving replies
@ethanmcconkey

Hi @jlind it must be relieving to not take any medications at this time.

I wanted to share this link in hopes it could be helpful: https://www.patientslikeme.com/conditions/chronic-idiopathic-axonal-polyneuropathy

I also wanted to introduce you to other connect members @johnbishop, @artscaping and @mlmcg as they have experience with different types of peripheral neuropathy.

@jlind How have you been feeling? What are your symptoms?

Jump to this post


Replies to "Hi @jlind it must be relieving to not take any medications at this time. I wanted..."

Thanks, Ethan. Last summer, I had an episode of extreme muscle soreness and weakness. After consulting an arthritis physician and my general physician, I was referred to a neurologist. He did an office exam and then recommended an EMG. That was done in October and I was told I had no dreaded diseases. After some MRIs I had a follow up visit with my neurologist. He said that there was evidence of axonal polyradiculoneuropathy. However, because my strength recovered significantly, he said I might have had a mild form of Guillian-Barre last summer. My power in office tests was 5 - to 5. I work out daily at a health club, so that may be helping. The neurologist has postponed a spinal tap, but will re-evaluate that in March when I see him next. So, I'm a bit bewildered as to what to expect in the way of treatments and therapy. Any thoughts would be helpful.