Hi @sds03 It’s certainly understandable for you to be frustrated and scared about your daughter’s situation. Having this tumor that’s not responding to treatment is beyond frightening. You mentioned the possibility of Proton Beam Therapy.
I do know that Mayo Clinic-Rochester and Phoenix have proton beam facilities. Posting a link to the Mayo Clinic informational page regarding this program:https://www.mayoclinic.org/departments-centers/proton-beam-therapy-program/sections/proton-therapy-facilities/gnc-20187682

I think it would certainly be worth contacting them for a 2nd opinion. Here is another link for you to get started with a request for an appointment. You don’t need a doctor’s referral but I’ve heard it can be helpful. Since your daughter’s treatment hasn’t been successful hopefully her doctors will offer their assistance for her referral to Mayo.
Click this link to get the process started: http://mayocl.in/1mtmR63

I hope you find some answers and a cure for your daughter! How old is she?