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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 6 days ago | Replies (5972)

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@johnbishop

Hello @portsu, welcome to Mayo Clinic Connect. Thank you for being an advocate for your dad. I have idiopathic small fiber peripheral neuropathy mostly in both feet, ankles and lower legs. I don't have any associated pain. I have no medical training or background but I can tell you to learn as much as you can about the disease. There are many types of neuropathy and it affects everyone a little different. Most people with neuropathy have symptoms of pain, numbness, tingling, burning sensation and more. I'm one of the 20% or so that only has numbness and tingling with no pain.

Here are a few links that may help you understand a little more about neuropathy.

Peripheral Neuropathy
-- http://www.ninds.nih.gov/disorders/peripheralneuropathy/peripheralneuropathy.htm

NIH PN Fact Sheet - http://bit.ly/2kIPey3
-- https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Peripheral-Neuropathy-Fact-Sheet

Diagnosing PN - http://bit.ly/2lpduEN

Easy to understand explanation of small fiber peripheral neuropathy by Matthew B. Jensen. Assistant Professor of Neurology, University of Wisconsin:
https://youtu.be/8nrv7lRvvwU

-- Peripheral Neuropathy
http://www.ninds.nih.gov/disorders/peripheralneuropathy/peripheralneuropathy.htm

NIH PN Fact Sheet:
-- https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Peripheral-Neuropathy-Fact-Sheet

Diagnosing PN:
-- http://bit.ly/2lpduEN

Does your dad have any pain associated with his neuropathy?

John

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Replies to "Hello @portsu, welcome to Mayo Clinic Connect. Thank you for being an advocate for your dad...."

Thank you so much. No pain as yet just numbness. He had nerve tests yesterday .