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Long COVID and breast size changes: anyone else?
Post-COVID Recovery & COVID-19 | Last Active: May 7 11:32am | Replies (5)Comment receiving replies
Hi,
Saw your post after searching about breasts and other tissues rapidly losing the form and structure
Ive always been a 34B size 4 and now have breasts larger than when I nursed my children, that have no shape, now like water balloons. Very strange and uncomfortable
I cant make sense of any physiological process that would cause this to occur
I too am in a Long Covid Program at a very well known medical center in southern Connecticut and the lead Dr (female) when I first met her two years ago commented, as if she had seen something before but didn’t own up to that, and said “ it’s almost as if your tissues that are holding you together or are breaking down” But did not follow up on this in any way. Then about a year later at our follow up appointment, I asked her about this and she brushed it off and didn’t even answer. A few months later at next appointment, she commented they were thinking of giving it a break between us, like she was going to discharge me but other LC symptoms were showing, that are significant POTS like, didn’t discharge me. I was shocked that any doctor or program would discharge someone or anyone with horrible LC symptoms.
The program gave me two referrals in the very beginning that have been helpful but have done nothing essentially nothing except f/Up appointments to bill for.
I’ve asked about Dysautonomia, about MAST CELL ACTIVATION syndrome, and histamine intolerance and nothing has come from it. Im wondering what the motivations are to do nothing
There seemingly are no organized tracts for nearly 40 million people in the country and 100’s of millions through the world to help
This site from MAYO is very helpful, but it is tragic that most long Covid suffers if they have any improvements because of research they’ve done and found other patients should be sites that may be found something to help
I hope you are improving and keeping your own research going for any help possible
Thanks for sharing
Replies to "Hi, Saw your post after searching about breasts and other tissues rapidly losing the form and..."
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@tiredoflc -I've not logged in for some time - and have neglected some who have posted to my previous posts. My apologies. It's that I am so tired and writing from a desk w/ a computer is easier than on my phone.
Your experience of being 'dismissed', discharged are similar to mine. The Infectious Disease doc I saw at a major teaching hospital in DC did the same after 2 in person visits and sending me for other tests (cardiac and one other that I can't remember.) I tried to make appointments with her but instead of writing ANYthing, she just turned the appointments down!
At the time, my breasts had not changed sizes or not enough for me to notice. I had so many other symptoms for which there was no accounting other than LC. POTS was only one because of periodic rapid heart rate; echocardiogram showed my heart to be fine.
I've now seen an endocrinologist at the same teaching hospital, after having blood work done via orders from my new Infectious Disease doc (who I LOVE) at another teaching hospital. So far NO ONE can explain my breast size change. The much larger now left one is so uncomfortable and gets in the way. Yours must be FAR worse for which I am so very sorry.
Next up for me: another blood draw to recheck the labs. The Endo. said I'd been taking my thyroid (hypo) medication incorrectly altho NO other TSH labs had ever shown the huge discrepancy when I took the meds the "wrong way" over years.
Today is my birthday and I'm going for a new hearing test. Hearing loss came about 9 months into this "journey" and it seems my hearing has lessened so I'm hoping the hearing aids can be adjusted v. buying new to reprogram.
I'm exhausted. Fed up. Angry. Why are we all being treated still by too many as if this is "all in our heads" until labs show it's not??
My research and reading continue. My buying of things that are supposed to help [Lipedema was also activated by COVID/Long COVID - and I learned I must have always had it but it never showed. It's a DNA illness and tho' I'm far from a size 4, and have always had "peasant thighs" (!), NOT like this. I still believe that while it may be lipedema, the right leg infection at the beginning of COVID was more than that and no one is willing to check.]|
To us both .. comfort from each other and all here since we are not getting it from doctors!
JE