@rkklinger: 5/6/26.
The description of your NET journey is unique, at least to me! I am glad to read that your husband is considering Lutathera PRRT infusion therapy to control, shrink & destroy these nasty cancer cells.
My story is short & sweet; Lutathera infusions (June 2024-Dec 2024) with fatigue as my main side effect, but occasionally I would feel some stomach discomfort (I told myself PRRT is attacking my small intestine tumor) and took a nap. Last week my 3 mo MRI with Evoist contrast shows continued tumor sizes continue to reduce! I am so very grateful to have received Lutathera PRRT treatment when my NET tumors had increased 40%!
Im sure you are considering RISK in your choice of treatment, i had treatment at City of Hope and the NET Oncologist and Nuclear Medicine Specialists carefully reviewed blood labs during my treatment, they were ready to take action if any irregularities appeared. The 4 infusions were a little boring, but NO problems ever occurred.
My gratitude for this NET treatment continues as I am back to feeling like my “pre-cancer” self. I have regained a great quality of life. Of course I still have Stage 4 NET cancer (metastases to liver @ primary tumor diagnosis), however now I have more time to enjoy each day to the fullest.
I know you will choose the best treatment available. If I were you I would start treatment sooner than later. Keep a positive attitude, visualize tumors dying, be gentle with your energy level & give your body the best nutrition and sleep to recharge.
Wishing you best health… Bette
dbamos1945.