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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
As info I was diagnosed with PN in 2003. Am not diabetic. Blood tests all normal. No numbness only pain with pins and needles in feet and legs and feel it progressing into my arms and back. Had every neurological test available and no known cause. Even went to Duke for 2nd opinion. I take 125mg lyrical per day and it helps. I have also been having laser treatments and I have improved 50%. Started 2 times per week and go 1 time week now. It is expensive and Medicare does not cover. It is $255 per treatment but worth it to me to get relief. Exercise helps me a lot but temporary.
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Hello @bruce2666, welcome to Mayo Clinic Connect. Thank you for posting what helps with your neuropathy. I also have idiopathic small fiber PN but I don't have any pain with mine. I only have the numbness so there is nothing they can give you to help with numbness. They suspect my PN may be hereditary but they don't know and at this point for me it doesn't matter. Exercise helps me also and mostly keeps me focusing on something else other than my feet and numbness. I did look into laser treatments earlier but with no guarantees I decided it wasn't worth the cost for me.
If you don't mind my asking, you mentioned you have improved 50% after the laser treatments, how did were they able to measure the improvement? I take over the counter supplements to help with my PN and saw some improvement initially but then haven't seen much since. On the flip side, my PN hasn't seemed to gotten any worse the past 2 years so I count that as a big plus since my neurologist told me it would continue to get worse.
John