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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: 10 hours ago | Replies (5974)Comment receiving replies
Hi @sandi50, welcome to Mayo Clinic Connect. I have idiopathic small fiber peripheral neuropathy and have had it for 20+ years.
Are you able to share a little more about the symptoms you have from the chemo induced neuropathy or what you have tried so far for treatments?
I'm tagging other members who have discussed chemo induced neuropathy in a post to see if they have any suggestions. @deeinpa, @elizm, @caf132, and @martid do you have any recommendations or information you can share with @sandi50 ?
@sandi50 I only have numbness with my neuropathy and do not suffer with any pain. I take over the counter supplements I found in a closed Facebook group that also has a website - http://solutions2pnpd.com/. It's not a cure but it helps with pain and helps me somewhat with my numbness or at least it seems to have stopped the progression of my neuropathy which the neurologist told me would happen. The important thing I've learned here on Connect is to learn as much as you can about your specific health condition and do as much research on it as you can. The more you know, the better questions you can ask your doctors and hopefully help them come up with a trreatment plan. You can read my story and how I found what works for me in an earlier post on Connect here:
-- https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985
John
Replies to "Hi @sandi50, welcome to Mayo Clinic Connect. I have idiopathic small fiber peripheral neuropathy and have..."
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Neuropathy in any form is worrysome. I am having Ulnar neuropathy and for the past one year I suffered a lot. Whatever it is till U get a good medicine your problem wont"t be solved. Patience is very important. I searched many doctors till I got a good one. Problem vary from one to another. We can't go in detail inwards. I have been taking blood thinners, tablets for health such as Coqueen 100 etc. has given me some strength. Moreover I am warding compression stockings which has managed to give some blood supply to me legs. Swelling & numbness have come down. Now i am able to do my routine work. But the problem is the tiredness during night times. Moreover i am afraid that if I skip my health tablets my legs will get that much health. Whatever it is, patience is important, testing many medicines etc. can be boring but ask for a good medicine.