← Return to Living with Neuropathy - Welcome to the group

Discussion

Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

Comment receiving replies
@micha

Hi I'm new in here and am really hoping you might be able to help. Back in September I woke one morning with a weird sensation in back of both legs. After a few days I started to get pain in the soles of my left foot. My doctor said it was planters fasciitis. Then it went to my right foot, then my two feet started to burn, I went to an out of hours doctor who said it was my back that was causing the problem.
To make a long story short the burning progressed to both hands. Ended up back at my doctor who ran a serious of blood tests all came back clear. After a few days I ended up back at out of hours doctor who did a reflex test, he told me I had prepheral neuropathy possibly caused by a vitiamn difiency. Started me on viviaptol multivitamin for a month, it did help left foot and both hands calmed down, back to my own doctor two weeks ago she said that it was pointing towards a vitiamn deficiency. Was put on a complete vitiamn b complex after a week my symptoms got slightly worse. And I also started to get abdominal cramps and other side effects of too much b6. The supplement I was on had 50mg of b6 in it. Can I add that my diet before I started the viviptol was very poor. But have been eating extremely healthy since. The weird part of this is that I only suffer when I'm in work once I'm at home I have very little trouble with burning actually none.
What has me stumped is how can a vitiamn deficiency only effect you at work? And could the vitiamn b complex have made it worse as I now eat healthy. I'm starting to think that maybe it is all coming from my back. Can anyone help.

Jump to this post


Replies to "Hi I'm new in here and am really hoping you might be able to help. Back..."

Hi @micha, welcome to Mayo Clinic Connect. I'm happy you figured out how to start a new discussion. I just saw your first post and was going to recommend that you do a search of discussions on Connect before starting a new one. Sometimes you will find one that has symptoms similar to yours with more members. When you do find one that fits and post your question, you will have more members that will see your post and be able to share their story and what works for them. It's easy to do a search on Connect. You just have to click on the small magnifying glass at the top of any Connect screen and type your search word or phrase. I'm glad you are asking questions and learning as much as you can about your health conditions. We all need to be our own advocate when it comes to our health. Learning as much as we can and asking questions will help us communicate better with our doctors and hopefully come up with a better treatment plan.

I have no medical background or training but I have learned a lot about neuropathy since being diagnosed with idiopathic small fiber peripheral neuropathy. Simply put neuropathy is caused by nerve damage of some sort, including pinched or compressed nerves. So to answer your question, the symptoms you are describing could be coming from your back but only a medical professional or specialist can provide the diagnosis and possible treatment that will help you. I'm happy to see that you have taken a really important first step for your health -- eating extremely healthy.

I'm tagging our moderator @JustinMcClanahan to see if we should move your post to the following discussion for more visibility where you can meet many other members who share some of your symptoms.

Groups > Neuropathy > Living with Neuropathy - Welcome to the group
-- https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/

I'm also tagging other members who have discussed back pain in previous posts to see if they are able to offer any recommendations for you. @grandmar, @jenniferhunter, @lioness, @artscaping, @steeldove do you have any recommendations for @micha?

John

Hello @micha. As @johnbishop recommended, I did move your discussion to the welcome group so that more members would see your post. There is also another very active discussion titled, "anyone here dealing with peripheral neuropathy?" that you may want to check out, https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/.

However, if you would like to start a new discussion on peripheral neuropathy, I recommend making it a specific discussion focused a specific issue as that can be really helpful for the group overall. For example, Peripheral Neuropathy: Do diet or vitamins help? or Peripheral Neuropathy: Suffering at different times of the day. Or any other particular topic of interest. Here is how to do that:

- Click on the group that you would like to start a new discussion in (i.e. Neuropathy)
- From the Group’s homepage, click on the grey box that reads START A DISCUSSION.
- Type a brief title, but be descriptive (as mentioned above)
- Type your message. This is where you can type in more detail about what you are experiencing or have questions about.
- In the bottom right corner from where you just typed your message, click the grey CREATE DISCUSSION box.

@micha, do you have any future tests or appointments on the calendar to address your concerns with your back?