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Macrobacterium abscessus in lungs

MAC & Bronchiectasis | Last Active: May 7 10:49am | Replies (12)

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Profile picture for Sue, Volunteer Mentor @sueinmn

@farfalina I am a BIG fan of conservative, nonsurgical treatment first - especially when it involves my vital organs like lungs and heart.
Are you seeing a pulmonologist with experience treating MAC and Bronchiectasis patients? Since both are rare diseases, not all pulmonologists or ID docs see these very much in their general practice. I would personally make sure I am getting treatment from one specializes who is BEFORE considering the surgical option.
Here is a list of many centers where they specialize. Maybe one is near you?
https://connect.mayoclinic.org/discussion/the-bronchiectasis-care-center-network-33-centers/

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Replies to "@farfalina I am a BIG fan of conservative, nonsurgical treatment first - especially when it involves..."

@sueinmn thanks for the info. Yes, all my docs are well versed in NTM.

@sueinmn
This was the most helpful info I’ve received so far. Thank you for posting the link.