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DiscussionMayo Clinic diagnosis of Gammaglobulin deficiency: Any tips?
Autoimmune Diseases | Last Active: 3 days ago | Replies (67)Comment receiving replies
Replies to "@foundryrat743 I re-read your original post - you have primary immunodeficiency so they’re switching you from..."
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@pm56 You are correct! Yes, I have the Common Variable Immune Deficiency disorder, and I knew that I was on a lower dosage! Indeed, getting this straightened out for me, is a big deal, because of my stroke history, for one thing! I have a few months to get with my immunologist, my electrophysiologist, and my neurologist, and I will seek their advice! Another twist, in my complicated medical problems, is that I also, have polyneuropathy, which has caused me so many problems, that I am in the process, of being tested for Chronic Inflammatory Demyelinating Polyneuropathy disorder! The treatment for that is the same I-V infusion treatment that I am getting for CVID! However, it would have to be at a much higher dosage level, according to my immunologist. So, my immunologist is contacting my primary Doctor, and my Neurologist, concerning the way forward! Another problem that I have, is that my primary Dr. has not contacted me, or seen me, since my Medicare ‘wellness’ check, in September, 2025, where he brushed me off, with just a brief breathing stethoscope reading! He was running late, and told me he had a schedule he had to keep, so off he went! I did not have s chance to talk with him, about any of my concerning symptoms. This was a couple months before, all of these diagnoses came up, which occurred when my new Neurologist saw me in December, and diagnosed me with polyneuropathy and ordered an emergency MRI, because of symptoms I was having, where I was having severe balance problems, could hardly walk, and had had several falls, in the early fall season! My previous neurologist had retired in February! I had seen him, briefly, in January, where he treated me for Parkinson’s. I had to wait 11 months, to get an appointment, with the new neurologist! In recent years, thousands of baby boomers, like me, had retired to the beautiful, touristy, area, where I live! We have only one regional hospital, and it has been overloaded with ‘white hairs’ ever since. So, the clinic, where I go to see my primary Doctor, in order to take care of the influx of new residents, has the clerks set up Medicare ‘wellness’ checks appointments, once a year! It didn’t used to be this way. I’ve lived here for 30 years, and the primary care Dr. has seen me every 6 months, where he took the time to examine me thoroughly, and discuss problems with me! I feel like it’s assembly line medicine, now, and when I did have some alarming symptoms, for several months, in 2025, I didn’t know what to do, except maybe go to ER, where, the last time I was there, with my wife, we had to wait 6 hours to be seen, and the ER Dr. misdiagnosed my wife’s problems, and eventually she was seen by a cardiologist ( at my insistence ), cause she had chest pains ( angina ), with a history of CABG bypass, and three previous heart attacks. My son-in-law is a Dt. at this regional hospital, and I called him, when my wife was misdiagnosed in the ER! He got the chief of Cardiology to come down to the ER, promptly! The cardiologist took one look at my stricken, pale faced wife, took an EKG, and, immediately thereafter had her transported immediately to the Cardiac wing of the hospital, directly into the cardiac intervention laboratory operating room, where the cardiac surgeons unblocked an artery, that was almost completely blocked with plaque, and they inserted a stent, which was successful, and she went into recovery and was hospitalized for several more days! So, that was my experience with the ER department, of my local, regional hospital, from a few years ago! I’m still traumatized, just thinking about that experience! So, no ER for me! Anyway, in my case, in the summer, of 2025, when I was having some worrisome symptoms, like falling, numbness, balance and vision problems, I chalked it up to, perhaps, a progression of my Parkinson’s! I thought, maybe, I could talk to my family doctor/primary doctor, at my Medicare wellness visit. As I’ve stated before, he had no time for me! Administrators ( non-medically trained people ), were insisting that the Dr.’s at that clinic keep to a strict time schedule allowed for Medicare wellness visits! Since I have not heard from my family Dr. since that visit, and have since, based on the MRI results, had 2 strokes, polyneuropathy diagnosis, immune deficiency disease, and possible demyelinating polyneuropathy disorder, I have decided that, perhaps, changing my primary care Dr. to a geriatrician Dr. might be a good idea! Do you think that could be a good idea, to changeout my primary care Dr.? A geriatrician might have the where with all to properly manage my health care, I reckon!