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Mayo Clinic diagnosis of Gammaglobulin deficiency: Any tips?
Autoimmune Diseases | Last Active: Jun 27 7:14pm | Replies (70)Comment receiving replies
@foundryrat743 are you on IVIG or a different kind of IV treatment like a biologic?
IVIG specifically comes with a thrombosis warning. I knew that when I signed the waiver as I’d already had two DVT’s, but I was desperate. I was being managed by a hematologist who - in hindsight - wasn’t very good or very careful. He advised I should come off the blood thinners for 3 days for a procedure, and they think that’s probably when it happened. We now know that I cannot be off blood thinners without bridging therapy. With 2 prior DVT’s and being on IVIG he should have switched me to bridging therapy for those 3 days but he didn’t. So here we are …
I would definitely speak to your team about the blood thinners and whether that IV treatment you’re on raises your risk for thrombosis. Best of luck 🙂
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@pm56 IVIG with a thrombosis warning, is what I’m on! So, because I also have episodes of atrial fibrillation, I had been put on blood thinners. However, because I have, also, Parkinson’s Disease and Polyneuropathy, I have had way to many falls, so the solution to that was for me to get a heart implant, ‘The Watchman”, to help prevent blood clots from forming in the right atrial appendage, of the heart, which could prevent ischemic strokes from happening! Since I’ve already had 2 ischemic strokes, and now that I’m on this IVIG therapy, because of diagnosed CVID, where there is a thrombosis warning issued, with it’s use, I really am in a quandary! Your experience that you have shared, is helpful, so I will talk to my Dr. about that, and we’ll see what he says, and recommends to fix the risk of my having another stroke, caused by a blood clot ( Ischemic )? Thanks for your reply! I appreciate your valuable sharing!