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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Apr 25 10:43pm | Replies (5972)

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@johnbishop

Hello @daniellef, welcome to Connect. I have small fiber PN with only numbness and tingling, no pain. There really is no cure that I'm aware of for neuropathy. There are treatments and life style changes you can make to help cope with and/or reduce the symptoms. It sounds like you are working on that and it's a great start. I started looking at dietary changes after reading The Wahl's Protocol and the story of the author Dr. Terry Wahl's who was able to get rid of her symptoms of MS and go from using a wheel chair to riding a bike. You can read her story here: https://terrywahls.com/about/about-terry-wahls/

I take a group of supplements - vitamins and minerals that I found in a closed Facebook group - The Solutions to Pain and Discomfort of Peripheral Neuropathy. It's all over the counter stuff and I asked my Mayo doctor about it and they passed it by a pharmacist who commented that he thought the Omega - 3's were a little high but didn't give any warnings. I know the group has over 7000 members and some are in the UK. The group is now a 501c3 not for profit organization and has their own website - http://solutions2pnpd.com/. You can read my story and how I found the group in an earlier post here on Connect at:
-- https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985

John

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Replies to "Hello @daniellef, welcome to Connect. I have small fiber PN with only numbness and tingling, no..."

Hello John,

Many thanks for your message. I will look into the possibility of taking supplements as suggested by your good self. I have an appointment at the end of November with my neurologist here in London so will let you know how I get on. I was also wondering if you have ever heard medical cannabis helping with neuropathic symptoms. Cannabis for medicinal purposes has just been made legal here in the UK but I am not sure if it will be prescribed for neuropathy - no doubt it will have to go through clinical trials before it gets approval for certain disorders. Thank again for your help and support. Regards Danielle