← Return to Living with Neuropathy - Welcome to the group
DiscussionLiving with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Replies to "Hi, I am from London, UK. I was diagnosed with idiopathic small nerve fibre neuropathy two..."
Thank you.
Hello @daniellef, welcome to Connect. I have small fiber PN with only numbness and tingling, no pain. There really is no cure that I'm aware of for neuropathy. There are treatments and life style changes you can make to help cope with and/or reduce the symptoms. It sounds like you are working on that and it's a great start. I started looking at dietary changes after reading The Wahl's Protocol and the story of the author Dr. Terry Wahl's who was able to get rid of her symptoms of MS and go from using a wheel chair to riding a bike. You can read her story here: https://terrywahls.com/about/about-terry-wahls/
I take a group of supplements - vitamins and minerals that I found in a closed Facebook group - The Solutions to Pain and Discomfort of Peripheral Neuropathy. It's all over the counter stuff and I asked my Mayo doctor about it and they passed it by a pharmacist who commented that he thought the Omega - 3's were a little high but didn't give any warnings. I know the group has over 7000 members and some are in the UK. The group is now a 501c3 not for profit organization and has their own website - http://solutions2pnpd.com/. You can read my story and how I found the group in an earlier post here on Connect at:
-- https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985
John