@bijou17 I'm sorry you're having to navigate trying to access the care you need, while feeling poorly. You concerns about your high test results are valid. if it was me, I would go back to my primary care doctor and ask if it's possible that there's another neuroendocrine tumor causing these results. I would also ask for a dotatate PET scan, if you haven't had one since your A1C and HsCRP have been high.

I've made it to Calgary and Drumheller, but not Edmonton yet. It's still on my list along with the Canadian Rockies. 🙂