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What to do when pulmonologist is passive?
MAC & Bronchiectasis | Last Active: 2 hours ago | Replies (6)Comment receiving replies
I relate to not having a competent pulmonologist who understands bronchiectasis. I also can’t afford to go outside my health system.
Fortunately my bronchiectasis is “mild” and nebbing saline works for me. I am very sorry you have to deal with more advanced disease. I hope you can find a way to get to a “center of excellence” like NJH. If my symptoms were worse I would definitely do that. Best wishes to you!
Replies to "I relate to not having a competent pulmonologist who understands bronchiectasis. I also can’t afford to..."
@bronchiectasaurus also, what % of saline do you use and where do you purchase it from? Thanks so much.
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@bronchiectasaurus I can't thank you enough for your encouragement and kind words. I called the closest clinic, which is about 3 hours east of me in Charleston, SC. They said my pulmonologist had to refer me. I think I will see if the PA will do that for me. I have literally seen the pulmonologist once, for about 20 minutes.
Have the best evening. And again, thank you for your kindness. It genuinely matters.
Sunni