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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Apr 25 10:43pm | Replies (5972)Comment receiving replies
Hi John, thank you for your reply.
I just started taking gabapentin 2 days ago and I was/am hoping for the best. I have two friends who also have neuropathy and they both say gabapentin/neurontin helps a little with numbness. I do not have shooting pains often associated with neuropathy. My doc told me that if it does not work, just stop taking it. Note that my doc is a DO and she has suggested doing tests to check for toxins, etc. However, since my condition is hereditary, I cannot think these tests will work for me. I do exercise and try to stay active.
I have not heard of LLLT or infrared sauna therapy before.
What supplements and vitamins do you take? Taking a drug (gabapentin) has been so far a last resort for me. I am just so frustrated at not finding something that will help.
There HAS to be something out there...............:)
Replies to "Hi John, thank you for your reply. I just started taking gabapentin 2 days ago and..."
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Hi @katrose, I found the supplements I take in a closed Facebook Group. They also have a website with a link to join their Facebook group. It's not a cure for PN but it does provide a natural solution that addresses what the body needs to help the nerves vs what the brain needs to stop the pain (IMHO). It hasn't totally gotten rid of my numbness but it has helped stop the progression so to me that's good enough. It may or may not help but it won't hurt you like some of the drugs for neuropathy. You can read my story in an earlier post here - https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985
The group which is also now a 501c3 organization has a website here- http://solutions2pnpd.com/ It doesn't cost to join, read and learn what they are all about before making a decision to try it. It's all over the counter vitamins and supplements. I ran them by my doctor and she had a Mayo pharmacist look at them but the only thing they said was they thought the omega 3 were a little high but that's about it. It's always a good idea to run the list by your doctor if you are taking other meds.
Low Level Laser Therapy Notes/Posts from other members and SaunaSpace.com which is what I've been thinking about.
Felix @swiss
-- https://connect.mayoclinic.org/discussion/in-search-of-relief/?pg=1#comment-130717
@holhealthcare
Can Low-Level Laser Therapy Have An Impact For Small Fiber Neuropathy?
-- https://www.podiatrytoday.com/can-low-level-laser-therapy-treat-diabetic-peripheral-neuropathy
Near infrared therapy - SaunaSpace
-- https://saunaspace.com/articles/