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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@ruthanderson

New to the group I have idiopathic neuropathy in both feet. I'm using Lyrica and Gabapentin. I've also have had the DRG implantation. Medications does not seem to help and the DRG is helpful but only to a point. Of course nights are awful. I'm thinking about coming to Mayo and was wondering which location is the best and how do you get an appointment? I live in California.

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Replies to "New to the group I have idiopathic neuropathy in both feet. I'm using Lyrica and Gabapentin...."

Hi @ruthanderson, I also have idiopathic small fiber peripheral neuropathy but only have numbness in both feet and ankles. I've never had the pain. If you would like to seek help from Mayo Clinic, you can call one of our appointment offices. The contact information for Minnesota, Arizona and Florida can be found here:
-- https://www.mayoclinic.org/appointments

I'm partial to the Mayo Clinic Rochester Campus but that may be because it's closer to me. I'm sure the Florida and Arizona Mayo Clinic Campuses are good as well. Is it possible to get your doctor to call and give you a referral? I think sometimes that might be helpful.

I was not familiar with the DRG implantation but did find another similar discussion you may be interested in reading through.

Groups > Chronic Pain > Has anybody had an implantable neurostimulator for chronic pain?
-- https://connect.mayoclinic.org/discussion/has-anybody-had-an-implantable-neurostimulator-for-chronic-pain/

John

Did your MD explain to you that gabapentin and Lyrica are virtually the same drug?