In 2021 my Oncologist put me on Anastrozole for about a year and then added Verzenio. I had diarrhea for months. Imodium helped, but I couldn’t stay far away from a bathroom ever.
The last three days I was on Verzenio I woke up in the middle of the night with the sensation that I was drowning and gasping for air. I saw on the Mayo some information that this can be a side effect of Verzenio.
I talked to my PA in oncology on the phone and she said to stop taking Verzenio and that, “It’s not buying you that much.”
In 2021 I was diagnosed with stage 1 and four cancerous lymph nodes. IDC. I took Verzenio for four months.
I have thirty side effects from Anastrozole and I’m done with my five years in August. BTW my oncologist has had me coming into the clinic almost every three months. I finally put my foot down and said, “No” And I said no to yet another CT scan for an elevated CA blood test. No to any more mammograms, ultrasounds, breast, MRIs in which I broke a rib, I had 30 sessions of radiation.
I said yes, to Signatera and blood tests every three months. I have had ten negative Signatera tests in five years. I am now getting these tests every three months. I want to live my life. I have finally learned how to say, “No.“
@sharon35981
What an awful reaction of feeling you are drowning and gasping for air!
Very scary to hear.
Wonderful you have had so many negative Signatera tests within 5 years...and you are done with your AI in August!
It sounds like you are in a very good place mentally and physically.
I also want to live my life...but must make a decision on Verzenio. I don't understand why my former breast cancer team never mentioned Signatera testing...seems odd they didn't.
And during that time last year I never heard of it.
This month it will be one year since my BM. I have a ways to go yet.
The fear of recurrence is always with me. Hearing your particular reaction to Verzenio is - honestly - depressing.
But thank you for telling me your experience, I will certainly take note of it.
All the very best to you!