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Rising Ca19-9 and elevated Alkaline phosphatase

Pancreatic Cancer | Last Active: 9 hours ago | Replies (7)

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@mcharlesfrancis
I've been a cancer fighter (not feeling well enough to be labeled as a "survivor" at this point in time, though I once was) since late 2022. I've employed many modalities (chemos 5FU, Naliri, Abraxance/Gem), SBRT, Histotripsy and distal pancrectomy. My cancer antigen hovering in the 80,000+ range right now so life is tough. I do push myself to do the most I can each day. Eating is ok a few days after chemo. I've lost 15-20 pounds since last year, but I had been keeping a "fat savings account" so I'm probably healthier in that way: do most of my own healthy cooking. My cancer metastasized to my lungs and liver (1 lesion each) and to the dreaded abdominal peritoneum. 6236 was released last Friday for use and at my appt yesterday my oncologist advised me to get on it so she is ordering it for me since I've literally tried everything else to this point. It's early release is feasible due to a congressman who's been on it and has been given extra months so far for cancer relief. Please look into, everyone.

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Replies to "@mcharlesfrancis I've been a cancer fighter (not feeling well enough to be labeled as a "survivor"..."

@mnewland99
I will definitely be asking about the RMC-6236 at his next appointment. I don't think his current oncologist will be willing to but the one he sees at Mayo I am sure will, because he mentioned it last appointment and that they were just waiting for it to get approved.