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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 1 day ago | Replies (6165)

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@annac123

Thank you, Colleen! My name is Anna and i have been battling symptoms of neuropathy since 2007. I was diagnosed with distal symmetrical sensory neuropathy May 17th 2016. My symptoms are burning pain in My feet when I walk. I do not have numbness or tingling or pain at rest. My doctor ordered orthotics for me and wanted me to take Lyrica and Amitriptyline. I chose to try diet, exercise and supplements first. My A1C has never been above 6.1 and at this time it is 5.4. So, my sugar is well controlled.

In August of 2018 the pain in my feet had become unbearable. I made the decision to try the Lyrica and Amitriptyline. The results were horrific. I was on 150 mg twice a day and 25 mg at night of Amitriptyline. I tried to maintain this dose and was on it for six weeks. I felt like a zombie! I spent most of my time sitting or in bed. I couldn't drive and it was impossible to cook or clean. I stopped both medications gradually but still feel the effects of both. It's obvious that that these drugs are not tolerated by my system.

I have a friend who had the adult stem cell procedure done one year ago. She has no pain. However, her insurance did not cover the procedure. I would do anything to be able to walk again but I'm having trouble finding reputable information on the internet about stem cell procedure. I happened upon your website and here I am!

I'm interested in any information I can gather here. I want to walk with my family again!

Thank you for adding Me!

AnnaC123

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Replies to "Thank you, Colleen! My name is Anna and i have been battling symptoms of neuropathy since..."

Hello @annac123, Welcome to Connect. There is another discussion you may be interested in reading where members are discussing stem cell treatments for neuropathy here:

Groups > Neuropathy > Stem cell treatment for peripheral neuropathy - any good?
-- https://connect.mayoclinic.org/discussion/stem-cell-treatment-for-peripheral-neuropathy-any-good/

John

I also have constant burning in my toes/feet. I have been taking gabapentin and Lyrica for months and I have the burning any way unless I take them both. Stem cell? I'm interested in that! I will ask my neurologist this week.
Until I joined this group, I thought I was the only person who has rather advanced neuropathy ... I'm glad I'm not alone. Thank you. Peggy

Im 55 years old male having ulnar neuropathy. I was a busy participant of this group but recently i didn't participate. By the by my neurological problem in left hand & leg has somewhat reduced. Now i have stopped taking blood thinner Asprin etc Recenbtly I was diagonized with varicose veins in left leg. Burning sensation with pain & tingling. Doctors have adviced surgery. I have also been suffering from fatigue syndrome. Im taking Coenzyme tablets which supports my body to do day -to- day work. I skipped yesterday & the whole day I was very tired. Doctors started with neurological problem & now shifted to varicose veins. Is it safe to undergo surgery? Will the nerves get affected? I wonder why one by one neurological problems in the form of CSVD,Briain shrinkage, Ulnar Neuropathy,, varicose veins. What else? kindly calrify Bros.