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What's your experience wtih Brinsupr (brensocatib)?
MAC & Bronchiectasis | Last Active: 1 day ago | Replies (646)Comment receiving replies
@ursala7
I don't know where you live but if you have Bronchiectasis and/or MAC you need to see a Pulmonologist that specializes in those areas whether you take Brinsupri or not. Even if you have to travel a couple of hours it would be worth it. Regular pulmonologists don't have the knowledge or experience with this disease to manage it.
Replies to "@ursala7 I don't know where you live but if you have Bronchiectasis and/or MAC you need..."
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@cwal Agree, and I live in the MPLS-St Paul area, so you'd it would not be such a challenge, but the one pulmonologist that does have expertise in bronchiectasis in the area is not booking any new patients. I have gone through the bios of every other pulmonologist I could find on the referral list from my primary and none of them mention bronchiectasis in their "scope of experience". I am going to see about Mayo in Rochester - not sure if I need a referral from my doc to get in there.