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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@johnbishop

Hi @pfbacon, I would like to add my welcome along with @lisalucier and other Connect members. I have small fiber peripheral neuropathy but only have the numbness and tingling so I'm lucky in that respect. I shared my neuropathy story and journey in an earlier post here on Connect. You can read more here if you like:
-- https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985

What type of neuropathy do you have? Are you able to share any more details of your diagnosis and any treatments that were suggested that might help?

John

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Replies to "Hi @pfbacon, I would like to add my welcome along with @lisalucier and other Connect members...."

Thank you. I took 1 gabapentin a day for the first year; a few months ago it started getting much worse quickly, my doctor increased gaba gradually to 9 a day, he said it's the max, each increase worked for awhile then it got worse, he added 75mg Lyrica at night, increased to 3 at night along with 2 aspirin every morning as needed, and 1/2 of 1 tramadol in the afternoon if needed (it doesn't make me sleepy). He sent me to Neurologist, we did blood tests and MRI, I will do the electric needles test on Tuesday, she will try to figure out what type I have and what to do. I have been hypoglycemic and living on the medical diet for it since 1987, so far I'm not diabetic. Do any of you have anything similar? A friend of mine, a nurse who suffers from viruses said that there are European and American doctors practicing in Mexico because of less government interference/paperwork and they might have medicines that U.S. doctors don't have (if drug companies can't make high profits on a medicine, they don't make it). Have you been to a foreign country for help? Tramadol is getting harder for me to get here, it has been put on the government's 'controlled substance' list, in fact, pharmacists have told me that Lyrica is also on the 'controlled' list - they call it a pain killer - I correct them, my doctor said it's an anti-seizure medication. Thank you! Peggy