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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
@johnbishop So strangely the pins and needles and electric shocks have gotten better since acupuncture and really upping my vitamin B12. I still have some tightness in my left elbow and left knee. I am still struggling to eat and have an impact there and also with my colon. Testing revealed not much going on inside, so gastro-emptying test to see if I have gastroparesis, which is also neurological. My new ENDO said extremity neuropathy is not diabetic in nature in his opinion (he ran tests and I passed all sensitivity), which is weird. Again, I was vitamin B12 deficient for some time and don't know if all of my health problems are back to that, or if there is something else going on. Acupuncture has made it so I can actually sleep some and not wake up with dead hands or have shooting pain in my hands. I was healthy in April and then everything went to heck. Although I just wanted to recommend acupuncture and ensuring you are testing for vitamin b12 and vitamin d deficiency; I have been dealing with both and a doctor that was not testing me after I tested low. I have a long road ahead of me I think, but there are moments I feel better, which is hopeful. Ironically, they took me off all diabetes meds, saying I have it managed. A bit weird.
Replies to "@johnbishop So strangely the pins and needles and electric shocks have gotten better since acupuncture and..."
Hi @nikkig -- I take 5,000 mcg lipsomal B12 liquid daily along with other supplements. My mother was a great believer in acupuncture and got relief with it for her RA. I tried it once for my PN but didn't feel that it helped me. That sounds like good news if you are able to manage the diabetes without medications.
You have a great positive outlook. Yes, it's probably a long road for all of us but if we can have a few days where we feel better that certainly helps. Wishing for one of those days today for all our PN cyber friends.
God Bless....
John
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Hi nikkig @nikkig,
I read your post and I noticed that your question is rotating around many reasons, the reason of ( was vitamin B12 deficient for some time and don't know if all of my health problems are back to that), the (or if there is something else going on), and the doctor ( a doctor that was not testing me after I tested low). My suggestions here is from my humble experience working in many hospitals here in USA. I believe all those previous reasons would play equally in the tightness, inability to sleep well, and the pain. Sometimes the diet that doctor recommend gives adverse effect, especially if taken with B12 vitamin (extra boost for heart health because of high level of the vitamin B12 coming from many resources pouring in the blood stream. Dairy products,eggs, and fortified cereals also play big in leading for extra B12. Unbalance meal that include too many meat also have adverse effect on the health of the heart. Extra or low proportions of the vitamin and bad cholesterol (LDL) can sitting there in the body and watching when the person going to ring the bell for the opportunity to appear. And can be a result of the daily stress for some elderly .
I hope you getting well soon!