Connect
← Return to Therapy for Lung Cancer with MET exon 14 Skipping mutation (METex14)?
Discussion
Therapy for Lung Cancer with MET exon 14 Skipping mutation (METex14)?
Lung Cancer | Last Active: 22 hours ago | Replies (14)Comment receiving replies
Hello hatterasj10202, I appreciated this posting very much -- it's the closest I've seen to someone who's been in my situation... but just a couple of years ahead of me.
How are you doing now? Of course I'm wishing you many long years ahead -- as I do for myself -- but at some point, I'm thinking I'll be ok with just stopping all treatments.
When you discontinued the Tepmetko, how long did it take you to lose the massive edema?
What other Rxs have you taken after being off Tepmetko other than Keytruda?
Blessings to you,
Replies to "Hello hatterasj10202, I appreciated this posting very much -- it's the closest I've seen to someone..."
Connect
@mangolinda8191
The time I had any therapy was 7/27/25 and it took 2 months for the edema to resolve. As you know, I took immunotherapy which was complicated by interstitial pneumonia requiring 2 months of steroids with complete resolution.
The followup PET/CT scans I have had from July 2025 until my most recent in April 2026, show much resolution of many lesions and reduction in activity in many as well. My disease continues to be isolated go just my left lung, with no metastasis out of the lung. No pleural disease, no systemic disease, no brain issues and no involvement of any lymph nodes. My Mayo Clinic pulmonary oncologist is quite delighted with the stability of my disease with no progression, but rather regression. He advised no therapy at this point and repeat PET/CT scan July 2026.
Hoping this answers some concerns. My personal best to you.