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What's your experience wtih Brinsupr (brensocatib)?
MAC & Bronchiectasis | Last Active: 1 day ago | Replies (646)Comment receiving replies
@ssieber That is so wonderful to hear. I would take it in a heartbeat. I am having difficulty getting a pulmonologist that knows about our disease to see me. I may have to pick a random pulmo from the referral list primary gave me, and that kind of defeats the purpose. Primary doesn't know diddly.
Replies to "@ssieber That is so wonderful to hear. I would take it in a heartbeat. I am..."
@ursala7
See an infectious disease Dr.
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@ursala7
I don't know where you live but if you have Bronchiectasis and/or MAC you need to see a Pulmonologist that specializes in those areas whether you take Brinsupri or not. Even if you have to travel a couple of hours it would be worth it. Regular pulmonologists don't have the knowledge or experience with this disease to manage it.