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A new diagnosis of Mycobacterium abscessus
MAC & Bronchiectasis | Last Active: 3 hours ago | Replies (12)Comment receiving replies
@kathyjjb
I so appreciate the information on your experience.
I do have a good Mayo pulmonary doctor. For now, (until he gets 3 positive cultures,) I’m doing airway clearance with 0.9% saline and levalbuteral. I had so much trouble last year when the airway clearance was causing lots of inflammation, increased cough, etc, so after experimenting with different saline, etc, this is what was suggested.
I’ve read a bit on MABC, but didn’t even know what questions to ask.
Replies to "@kathyjjb I so appreciate the information on your experience. I do have a good Mayo pulmonary..."
@nlee1954 MABC is a challenge to cure, difficult but my ID doc says not impossible. Let’s keep positive that we will be in the percentage of patients who overcome this bug!
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@nlee1954 I just responded to farfalina about treating MABC with a virus along with the antibiotics. Dr Daly (NJH) had mentioned the treatment in one of his BE/NTM videos. My sister has a friend that is getting that treatment now. I'm hoping to talk to her sometime and will post any good info. It sounds like the antibiotics were unsuccessful and she sought out a clinic (don't know details) that is now giving her the matched virus via IV along with antibiotics.