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bruceconstantine avatar

What a long, strange journey it’s been!

Prostate Cancer | Last Active: May 6 9:09am | Replies (9)

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Profile picture for Jeff Marchi @jeffmarc

Between 10% and 15% of people that get prostate cancer do not have a PSA increase that goes along with it. It makes it very difficult to figure out what’s going on after treatment. Now we have the PSMA PET scan, however, and that can keep track of what’s happening.

I’ve heard a few people on the ancan.org Weekly online advanced prostate cancer meetings, With the same problem, you have, Over the last few years. You could come to one of the meetings and see what’s going on. If you get there real early 10 minutes before the meeting starts, you can usually be talked with First. They will discuss your case and give recommendations for treatment. They have been doing it for 17 years. There is a meeting tonight at 8 PM Eastern time. You must have GoTo Meeting installed to attend the meeting it’s free on every device. You put answercancer As the meeting name to join it. If you go to the website, you can watch previous meetings and see what’s happening. If you go to the website And sign up for the advanced prostate cancer meeting, you will get a weekly newsletter that is full of information about the latest treatments. You don’t have to go to the meeting, If you wanna stay anonymous, you don’t have to put your name down or have your picture shown.

Zytiga is very hard on the heart. It gave me high blood pressure and four afib Events in the 2 1/2 years I was on it. I am also on Nubeqa now and it works great.

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Replies to "Between 10% and 15% of people that get prostate cancer do not have a PSA increase..."

@jeffmarc yep your right as usual. You ve got it figured out in your situation. I m impressed how you stay fit at 78. Your advise is great for helping others . You will someday be a Saint in heaven for being so kind to those in Panic mode upon first discovery- YIKES - it’s Prostate cancer they say. HELP HELP. lol