Hi @tucsonguy
As @johnbishop recommended, I moved your message to the main introduction discussion in the Neuropathy group so you can meet others who have neuropathy related to diabetes and chronic kidney disease. In addition to the members of this group, I'm also tagging @2011panc and @cehunt57 on this discussion as they too have experience with diabetes or CKD and transplant and may have some thoughts to your questions.

That sounds like mine although I also have arthritis in shoulder and hand along with the Neuropathy . Feet and legs to knees involved. I too, take a lot is Shaklee Supplements
. What supplements have you found helpful ?

Hi Bob @tucsonguy. I’m Cheryl @cehunt57 that @colleenyoung referred to on August 14. I’m sorry it took so long for me to respond. I was having some computer/technology issues around that time. Colleen referred me because I think we may have some things in common. I am type 1 insulin dependent diabetic since 1975. I’ve also had many of the complications including neuropathy (both peripheral and autonomic) and CKD, plus others. The peripheral neuropathy affected my hands with numbness, loss of dexterity & fine motor coordination, tingling, itching, burning, throbbing and aching. Thank God I didn’t have symptoms in my feet. In the 1980’s I got an endocrinologist and a glucometer. I also was referred to a neurologist who did EMG testing. The only treatment offered was to take vitamin B and ibuprofen. I was told I also should have surgery for carpal tunnel syndrome and that diabetics are more prone to things like that and “trigger fingers”. It was also around that time that I found out that there is no ailment that a diabetic can have that doesn’t have some effect on the diabetes and vice versa, not even the common cold! Over the next few decades I added more complications and had experienced more meds, treatments and medical regimens. The thing that was most helpful was blood glucose testing and tight control. I had an insulin pump at one point which helped bring the HbA1c down except that Ihad developed hypoglycemia unawareness. My blood sugar would bounce between 20 - 600 all in the course of a day. I was at the mercy of others to rescue me and treat the lows! In 2005 I had a pancreas transplant. It was like my own personal miracle. For the first time I had a normal HbA1c (5.3). The neuropathy, retinopathy & nephropathy all improved and stabilized. I did not become insulin independent but could stay in blood glucose range with just a fraction of the pretransplant dose of insulin. The hypoglycemia unawareness disappeared. Everything stayed pretty stable for about 11 years (twice the usual lifespan of a transplanted pancreas). In 2016 I started to have some decline in kidney function. I met criteria to be listed for kidney transplant. I went through two pretransplant evaluations at different facilities. I was approved and accepted at both facilities. I chose Mayo in Rochester. I’m from MN. I go back in September for an annual review. My transplant listing status is currently inactive because I’ve had an improvement in kidney function last year. I’m trying to be proactive and am looking for a living kidney donor for a preemptive transplant. More importantly I’m trying to live out the Christian faith I proclaim and trust God that this journey will end the way it is supposed to. Wishing and praying the best for you as you travel your own journey.

Hi Cheryl,

Thank you for sharing your journey. I've been diabetic for about 25 years and the kidney failure is due to the diabetes. I just completed my physical and hopefully will pass the committee tomorrow. I am very lucky to have a living donor who will start her physical soon. I currently am on a Medtronic CGM pump which helps keep my BS fairly under control. I'll keep you updated as I go through the process.