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Macrobacterium abscessus in lungs

MAC & Bronchiectasis | Last Active: May 7 10:49am | Replies (12)

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Profile picture for notnancy88 @notnancy88

Me. I.e. the med routine. I did it all at home. Same regimen. The boxes of supplies were delivered. If you only have Medicare A&B, the IV meds aren’t covered by Medicare - declined. If you have good secondary coverage, it takes over the 80%. The infusion center at the only hospital in our area 75 miles one way would not work with us. Additionally I didn’t want to sit in an infusion center every day.
The tigycycline is a rough nausea inducing med - but effective. I was on Zofran but then that constipated me. I stuck with it though and added different fruits and veggies to my diet and pushed more fluids. It was a battle. Good Luck. M.abscessus Abscessus is not a diagnosis anyone would wish for.

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Replies to "Me. I.e. the med routine. I did it all at home. Same regimen. The boxes of..."

@notnancy88 thanks for your input. I have a Medicare Advantage plan and luckily the meds are covered according to the infusion center. Even still the copay’s are insane and I will reach the out of pocket $2100 in a few weeks and then all drugs should be covered this year…I pray for all who have this invasive disease.