← Return to Peripheral neuropathy recurrence after stopping ethambutol

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Profile picture for linda1334 @linda1334

@cd33 My doctor tried to say that it was "very unusual" to get neuropathy from ethambutol and that he had many patients taking the drug, some even in their 80's (I was 70 when I started it) and he said they were fine. It made me feel like he was saying I was crazy which I knew I wasn't. And there would be no other reason for the neuropathy because everything else checked out fine. I don't know what it is with some of these doctors!! I ultimately moved on to another ID doctor as the one I was seeing moved out of state. I wasn't unhappy about that.

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Replies to "@cd33 My doctor tried to say that it was "very unusual" to get neuropathy from ethambutol..."

@linda1334 hmmm I don’t understand that either. They didn’t believe anyone could get it that quick, as I did. And staying on for 18 further days I had shooting pains all over so it wasn’t just the feet.