Hello. I'm new to this group, and I have been diagnosed with Small Fiber Neuropathy. I have itching (general body and scalp), in addition to the burning on my thighs, and occasionally pain and burning in my feet. I take OTC anti-histamine for my itch, on an as needed basis. Lately I have been taking it every other day. There are times I can go for a week. I've found that's the nature of this confounding disease.

Hello @willym, Welcome to Connect. I'm glad you found us. I also have small fiber PN in both feet/legs but I only have numbness and sometimes tingly feeling to slightly above the ankle. I do not have the pain that a lot of people with PN have. I've had mine for over 20+ years but only recently bothered to get a diagnosis in the past 2 years. One thing I have learned is that there are a lot of scams out there looking to take your money in hopes of the cure for PN. You really have to do your homework and do your own research.

You are right about the nature of the disease...we are all a little different in the way that we are affected and what works for one may or may not work for someone else. I know one thing that has helped me is changing my lifestyle and eating healthier and avoiding as much sugar as possible (should really ditch it all, but hey, you have to have some chocolate once in awhile).

@willym have you found anything that helps with your PN?

John
My story here -- https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=44#comment-65985

thanks for your reply. I use a small dose Lorazepam when the autonomic system flares up, and that really seems to help. I've read about (and tried a couple of times) using a NEW toilet bowl brush and rubbing it lightly over areas on my skin that are burning/painful. It is a desensitizer. I try it from time to time. I'm interested in any info/successes on healing nerve damage.