← Return to Living with Neuropathy - Welcome to the group

Discussion

Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

Comment receiving replies
@johnbishop

Hi @wanda78wren,
I would like to add my welcome along with @kanaazpereira. I have idiopathic small fiber peripheral neuropathy in both of my legs/feet but have never had any associated itching. I have no medical training or background but I don't believe it's a common symptom for neuropathy. I did find some interesting information about Neuropathic Itch here:

-- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3139924/

It might be helpful for other members in the discussion to know if you have a specific diagnosis of neuropathy and other associated symptoms.

John

Jump to this post


Replies to "Hi @wanda78wren, I would like to add my welcome along with @kanaazpereira. I have idiopathic small..."

Hello. I'm new to this group, and I have been diagnosed with Small Fiber Neuropathy. I have itching (general body and scalp), in addition to the burning on my thighs, and occasionally pain and burning in my feet. I take OTC anti-histamine for my itch, on an as needed basis. Lately I have been taking it every other day. There are times I can go for a week. I've found that's the nature of this confounding disease.

Hello @willym, Welcome to Connect. I'm glad you found us. I also have small fiber PN in both feet/legs but I only have numbness and sometimes tingly feeling to slightly above the ankle. I do not have the pain that a lot of people with PN have. I've had mine for over 20+ years but only recently bothered to get a diagnosis in the past 2 years. One thing I have learned is that there are a lot of scams out there looking to take your money in hopes of the cure for PN. You really have to do your homework and do your own research.

You are right about the nature of the disease...we are all a little different in the way that we are affected and what works for one may or may not work for someone else. I know one thing that has helped me is changing my lifestyle and eating healthier and avoiding as much sugar as possible (should really ditch it all, but hey, you have to have some chocolate once in awhile).

@willym have you found anything that helps with your PN?

John
My story here -- https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=44#comment-65985

thanks for your reply. I use a small dose Lorazepam when the autonomic system flares up, and that really seems to help. I've read about (and tried a couple of times) using a NEW toilet bowl brush and rubbing it lightly over areas on my skin that are burning/painful. It is a desensitizer. I try it from time to time. I'm interested in any info/successes on healing nerve damage.