@drbf You've been through the works! The thing about pain from my hips down has an interesting history. In 1989 I was in India for a month and contracted something on my very first day (stupidly drank a lime soda with ice cubes!). I had the usual vomiting and diarrhea but also a very high fever. I was traveling alone and was in a hotel that if I had died in they may have noticed a week or two later! Anyway, after several days I finally began to get out and try and be a tourist but I began having terrible pain in my legs. It was an odd pain as it would sort of travel about and wasn't fixed at any one place. This continued through my time there and throughout the rest of the trip (to Singapore and Bangkok) before returning home to Honolulu. I saw several doctors about the lower extremity pain and was tested to see if I might have had malaria or one of several other tropical diseases but all the tests were negative. Finally, a rheumatologist theorized that any viral infection I would have would result in the shedding of antibodies and that they for some odd reason were accumulating in the periosteum of my lower extremities and causing inflamation and the resulting pain. Ever since then (1989) whenever I have a cold or flu or any viral infection I have this pain. Since I have had LC, this pain is nearly always present to some degree, which makes me believe the theory that LC is residual reservoirs of active virus that last beyond the acute infection. That's my theory! As for the care and treatment available for LC patients, I think the health care industry has really dropped the ball. There are millions of us and there will be more each and every season. The problem isn't going to go away. It is only going to become more profound. If I could listen in on discussions of health care CEOs I imagine I would hear, "What are the long term consequences of huge numbers of LC patients on the system and how the hell are we going to afford this?" It all, sadly, comes down to money. As a note, I was on low-dose naltrexone for some months and it did give me a bit of an energy boost but my doctor would not continue it, saying it was not meant to be a forever treatment. I've had no heart issues that I am aware of. At the onset the virus wiped out the hearing in my right ear (now ware an aide) and for nearly a year I had horrific episodes of vertigo. Through PT that was eventually controlled but I still have balance issues and have to be careful not to turn too quickly or I may fall. My worst continuing symptom is fatigue. I may have a week or even a few of feeling pretty good but the fatigue always rebounds and may set me back for days or even weeks. But I am lucky not to have some of the very disabling symptoms that many people describe. And lucky that I retired before acquiring LC. I cannot imagine trying to work through it. Well, long-winded here! Best wishes to you and your continued improvement.