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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Apr 25 10:43pm | Replies (5972)

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@llhodnett

Hi Colleen. My Dad was just diagnosed with axonal sensitive motor polyneuropathy. He is 78 years old and has always been in great shape. He works out at a gym at least 3 times/week. He experienced sudden fatigue two weeks ago and pain in both legs (mostly in his calfs). He became so restless and did not sleep for an entire week. Doctors told him it was a virus and told us to wait it out. We took him to the emergency department 3 times in one week - once by ambulance and finally they admitted him. He has been in hospital for a week now and blood tests have revealed this diagnosis. At this point, he cannot stand. He says he cannot feel the floor. He can move his legs while lying in bed (up and down) and can move his ankles in a circular motion. His strength, however, has significantly declined. He is on his 3rd of 5 treatments of IVIG treatment. His physician told him today that if it works, she does not expect to see improvement for one to two weeks. She also said that if it does not work, there is no other treatment option. Can you or anyone else offer anything new on this condition? Thank you so much!

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Replies to "Hi Colleen. My Dad was just diagnosed with axonal sensitive motor polyneuropathy. He is 78 years..."

Hi @llhodnett -- welcome to Connect. I see that your post was addressed to Colleen but without her username tag she will not normally see a post unless she happens to see her name. By adding her Connect username @colleenyoung she will receive an email notification and be able to reply to your post.

I would like to thank you for being an advocate for your father. It's really important to be your own advocate or have someone like yourself advocating for you. I'm 75 and have idiopathic small fiber peripheral neuropathy but only have numbness in my legs and feet, no pain. I am tagging a few members who have discussed an IVIG in a post and may have information they can share with you. Please meet @bburleson1 @gratefulone @mllucas @mllucas @ginifuller @captnick @kdp3186 and @5134177246.

John