@kjoeme1978
I found that I have to avoid foods with oxalates in them, spinach and kale are high in them and I just found out arugala has it. The ''spring greens'' salad producers slip in arugula, to me, it's bitter, peppery, and feels like hot sauce on my lips, so it goes into trash when I pick it out. Other foods on the high oxalates list are: bran cereals, wheat germ, quinoa, soy products, buckwheat, beets/beet greens, rhubarb, swiss chard, okra, leeks, sweet potato and white potatoes with the skin on, and almonds and cashews. I can eat almonds if the skin is off. I peel the skin off the sweet and white potatoes and don't seem to have problem if I do that. Just type in foods high in oxalates for tips on avoidance and how to cook greens to reduce oxalates, etc. There definitely limits on what you can eat, many of the foods I've had to cut out were ones that I loved. I'm on 200 mg of hydroxychloroquine orally, and apply tacrolimus ointment to flares on my lips. Chlobetasol also works on lip flares, but it's a corticosteroid and is short term only. I've not heard of using LDN for OLP. I'm sorry you're having to deal with this, I was diagnosed with OLP in 2019....it's a journey, God bless!
@ladonnai I started radio frequency on lips to give them more stability. I had lost all feeling and sagging. I have had 4 treatments and they are doing better. I don’t have open sores. This is totally outside the box. I am on 400 mg hydroxy and it has been 9 months. Some doctors say it can take a year. I don’t feel it is ever in remission. But thanks for your insight. Thanks for sharing. I am basically doing the same thing