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Who has GCA, Giant Cell Arteritis?

Autoimmune Diseases | Last Active: Jun 9 4:47pm | Replies (56)

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Profile picture for 4missvct @4missvct

@momac59 Hi. I have been diagnosed with GCA for about 20 years. It started with PMR. I was on prednisone for about 2.5 years at first (took that long to become weaned off prednisone). Now I am on Methotrexate. I have had the beginning of a relapse a few times, but I contact my doctor soon and usually a small increase in dosage (or in the past a change of medication) resolves it. My relapse usually begins with a sensitive scalp, and sharp headaches. I usually give those symptoms a few days to just make sure they don't go away before contacting my Rheumatologist. The signs of a relapse for me are not dramatic (like vision issues) but less serious, and are easy for me to recognize.
Hope this helps to reassure others regarding my long term experience, Prior to my diagnosis I had no knowledge of GCA or had even heard of it. Very thankful that has not impacted my day to day life in any major way. I get apprehensive when I begin to get signs of a relapse, but have confidence in my doctor that she can help me. I know that places like the Mayo Clinic are there to help also. I just make sure to take my medication and have regular visits with my doctor.

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Replies to "@momac59 Hi. I have been diagnosed with GCA for about 20 years. It started with PMR...."

@4missvct
Your comment is just what I needed to read! After almost 2 weeks in Mayo, I’m finally home. Doctors slowed tapering a bit & gave me an IV infusion of Actemra or Tyenne & that helped enough to lower my prednisone without causing symptoms of relapse.
But in all my time to think with this new diagnosis I was wondering how will I know if I’m having a flare? With my Lupus it’s very subtle & builds slowly. Your comment about how your GCA manifests made me calmer thinking about how this last 6-8 weeks of illness started for me before diagnosis & treatment, making simple sense. That specific kind of headache & scalp tenderness, night sweats are very different for me than the horrible fatigue, joint pain & loss of appetite etc., of a Lupus flare
Thanks for sharing your experience!

@4missvct
May I ask if you’ve experienced any side effects from Methotrexate?