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DiscussionWho has GCA, Giant Cell Arteritis?
Autoimmune Diseases | Last Active: Jun 9 4:47pm | Replies (56)Comment receiving replies
Replies to "@momac59 Hi. I have been diagnosed with GCA for about 20 years. It started with PMR...."
@4missvct
May I ask if you’ve experienced any side effects from Methotrexate?
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@4missvct
Your comment is just what I needed to read! After almost 2 weeks in Mayo, I’m finally home. Doctors slowed tapering a bit & gave me an IV infusion of Actemra or Tyenne & that helped enough to lower my prednisone without causing symptoms of relapse.
But in all my time to think with this new diagnosis I was wondering how will I know if I’m having a flare? With my Lupus it’s very subtle & builds slowly. Your comment about how your GCA manifests made me calmer thinking about how this last 6-8 weeks of illness started for me before diagnosis & treatment, making simple sense. That specific kind of headache & scalp tenderness, night sweats are very different for me than the horrible fatigue, joint pain & loss of appetite etc., of a Lupus flare
Thanks for sharing your experience!