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Profile picture for lrb67 @lrb67

I am feeling a little frustrated with the whole BCG shortage. My first round of BCG was delayed a couple of months until a resupply came in. I had some more cancer removed from my bladder 7 weeks after my final BCG infusion (is that the right word?) and my urologist ordered another round of BCG ASAP. It has been 2 weeks, and I found out today that I am on the waiting list until they get another supply of BCG. The urologist said that BCG is the "gold standard" for bladder cancer care. It is really not, if they don't have the BCG to provide. I asked about Gem/Doce but he said it wasn't available locally. I may have to drive a bit to go to a large cancer center in Chicago or maybe go to Mayo in Rochester to get treatment (6 hours away). I am trying to weigh the options of waiting for BCG here or finding it or Gem/Doce available but a long drive away.

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Replies to "I am feeling a little frustrated with the whole BCG shortage. My first round of BCG..."

@lrb67 it sounds like another opinion is a good decision. My husband was determined to be a BCG failure at Mayo after his cancer returned during maintenance BCG treatment. I'm not sure why urologists continue with prescribing BCG when it is not readily available and patients have recurring disease shortly after/during treatment. You can't go wrong with Mayo Rochester.