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Oral Lichen Planus

Autoimmune Diseases | Last Active: May 24 3:03pm | Replies (96)

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@kathy333 sounds like you are on right track. I did patch testing thinking it was something I was allergic to. It was done by a Derm pathologist at St Louis University. It has been helpful and I have an app from the American society of contact dermatology on phone to check all products I use on face or hair and eat. On all these other meds every one reacts differently to these and you keep trying until you find the best solution for you. Keep forging ahead. Sounds like you are getting good responses. What a horrible autoimmune disease. Not much support with clinical trials which is too bad.

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@kjoeme1978
I found that I have to avoid foods with oxalates in them, spinach and kale are high in them and I just found out arugala has it. The ''spring greens'' salad producers slip in arugula, to me, it's bitter, peppery, and feels like hot sauce on my lips, so it goes into trash when I pick it out. Other foods on the high oxalates list are: bran cereals, wheat germ, quinoa, soy products, buckwheat, beets/beet greens, rhubarb, swiss chard, okra, leeks, sweet potato and white potatoes with the skin on, and almonds and cashews. I can eat almonds if the skin is off. I peel the skin off the sweet and white potatoes and don't seem to have problem if I do that. Just type in foods high in oxalates for tips on avoidance and how to cook greens to reduce oxalates, etc. There definitely limits on what you can eat, many of the foods I've had to cut out were ones that I loved. I'm on 200 mg of hydroxychloroquine orally, and apply tacrolimus ointment to flares on my lips. Chlobetasol also works on lip flares, but it's a corticosteroid and is short term only. I've not heard of using LDN for OLP. I'm sorry you're having to deal with this, I was diagnosed with OLP in 2019....it's a journey, God bless!