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Anyone else have multiple autoimmune diseases?

Autoimmune Diseases | Last Active: 2 days ago | Replies (147)

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@becsbuddy
I have a very hard time being positive. I've got sjögren's syndrome, Sleraderma, Raynouds,skin cancer thats always being treated somewhere on my face and head. I've so many symptoms that are always so busy on me. Pain is number 1, I've Fibromyalgia too. I am being treated for Cancer now in three places. 2 places in my left lung and it was deflated totally and full of cancerous fluid. They just removed the fluid off my lung and its starting to inflate again. Coughing terribly and getting sick. I'm weak and I am miserable 😭. It's what I want to do a lot , but I don't. I try to keep postive as they start chemo and radiation next week. I have pain in my left jaw to my ear from sjögren's. It's the salivate glands that are inflamed in there. I pray that stops soon! My other place of cancer is in my pelvic area in the middle of a lot of blood vessels and they can't operate on either of my cancer masses. They can only kill them. I'll be having chemo for a long time along with maintenance I'm sure. I've had 22 operations already and really don't want anymore ! Having Connective Tissue Disease can cause cancer 4x higher risk than another. I've had many blood vessels break in my brain and cause ischemic strokes in my hemispheres. I take meds like I have a heart issue. No high BP and my heart is fine so far. They can't stop them really. I have been lucky to not have had any in a year now though. I have a Neurologist and Ruymatolgist at John Hopkins I live about about 2.5 hours away from them , so not bad drive. They are the best around. I also have an oncologist there, but doing treatment for cancer where I live with his instructions being done. You take care!!!

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Replies to "@becsbuddy I have a very hard time being positive. I've got sjögren's syndrome, Sleraderma, Raynouds,skin cancer..."

@taylor05 you will be in my heart today! Your struggle is real, and thank you for sharing your story. Chronic illnesses and pain are vastly misunderstood, and our endurance and strength tested in more ways than we could ever have guessed.
Continue your path, this journey, knowing we share your pain and confusion. Only those who experience such tests, treatments and chaos (hopefully their medical team/friends/family too) can even begin to comprehend mentally, much less physically.
My teaching hospital is a 2 hr. drive. The 4 hour trip and tests, etc., is draining. Yet I am so blessed and grateful for the six Specialty areas who organize and work together to provide my care. Also my supportive spouse, he's a trouper, these long years of illness shaping our lives so unexpectedly.
May you feel at least a brief moment of peace in the midst of your day today!

@taylor05 I'm sorry you are going through this. Think of healing energy running through you as you go for treatments. 🙏