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SI Joint Dysfunction: Anyone had their SI joints fused?

Spine Health | Last Active: Jul 12 4:24pm | Replies (72)

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@dkcasey I was fused from L4 -S1 worst decision I ever made but they didn’t find out until they got in there that L 5 was loose. My opinion they should have found away to fasten L5 to the Ines above or go on down to S2 or 3 because have my whole spine as leverage against the S1 . 3 weeks after my fusion someone came behind while I was seated and twisted my shoulders not knowing I had surgery. It didn’t bother me but the NO ordered imaging that looked good . I seen My Neurosurgeons unexperienced NP week 4 and was told it could be a set back but I could start lifting up to 25 lb and start bending and twisting . 3 years later I still struggle lifting 10lb . So I went home that night and showered and bent to dry my legs , I felt a burning and swelling in the fusion area. I could rub it and it would cause pain immediately in the tes ticles! A few weeks later I see the surgeon ( I’m in a wheelchair because I couldn’t make it to the 2 nd floor) and he says what are you here for ( I should have said to waste your time ) I said the swelling and tes ticle pain and inner thighs very painful WITHOUT getting me out of the wheelchair he says no you don’t have that.. Next visit he said Sorry it’s a failed fusion go get a spine stimulator that turned out making things a lot worse. I just had the stimulator removed last month. I have been to 9 Surgeons 2 orthopedic Surgeons at Mayo and one of them I seen twice( very heart breaking thinking it’s a top rated hospital for me to make a 12 hour drive just to have more imaging and to be told go get a stimulator and the second time I seen Dr Sebastian all he said was I don’t recommend you having any more surgeries of any kind any more! Final results from a failed stimulated also I now can’t wear pants or underwear I have to wear depends so I can roll them down so they don’t touch my low back. If I wear my wife’s sleep shirt I can go non stop for 1-2 hours but put oversized sweatpants on and I’m falling all because it damaged the surface nerves on my lower back

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Replies to "@dkcasey I was fused from L4 -S1 worst decision I ever made but they didn’t find..."

@sbtheplumber1 I am sorry to read all of this. If you can afford to - see if you can go to UC Health (UCSD research hospital) orthopedic spine dept. Dr. Zlomislec told me he does other doctors failed fusions. He's AMAZING and so is their department! I recommend to not give up. He did my lumbar and my cervical fusions.
About your nerves: I had excited nerves from the cervical fusion was much more problematic for me. Yes, you can't have anything touch your skin for a while. I went to a very good MFR therapist. That resolved my issues with the nerves on fire. I also added HEME iron supplements and B12, which cured my neuropathy in my left leg. (lots of activity too - walking, stretching, self-massage). It can take 2 - 10 years for the nerves to remodel. If you are not an addictive personality type, I also recommend Percocet. I have a tailbone/arthritis that can't be helped. So the medication completely controls that nerve/arthritis pain. It took me 20 years to get to the right surgeon (and 4 different opinions the last 3 years before surgery). Keep plugging away if you can, on the days that you can!