@judy15
I had PMR in both my shoulders and both my hips. It was during Covid so I thought at first I was just stiff and out of shape because I wasn’t going to the gym. It got so bad that when I got out of bed in the morning and tried to walk it was like I was paralyzed and my hips were frozen until I could finally get going. When I got in and out of the car I had to lift my legs in and out with my arms because they couldn’t move on their own. I started on 20 mg prednisone and felt better in 6 hours. I then went to 10 mg and tapered down 1 mg a month to 0. I had no side effects from the prednisone except it gave me a whole lot of energy. That was 5 years ago and I have not had any relapses. I believe my PMR was triggered both by physical and emotional stress. I had just had knee replacement surgery and 4 weeks after that my mother began very ill and then my husband was also in the hospital so I was trying to go back and forth between Alabama and Pennsylvania. I have not had any stress like that since so I think that is why I am still OK. I do have some other autoimmune issues like mild Reynaud’s and hypothyroidism. I am 75 and otherwise in good health but continue to see my rheumatologist once a year.

@judy15 I have had pain and stiffness in shoulders, hips, thighs, knees, ankles, forearms, wrists.
But it does seem to "travel" without predictability! I'm newly diagnosed and am on a second 4 week course of Prednisone, tapering from 20mg to 5mg over that time. The first round helped the pain and most of the stiffness, but each tapering week had rough days. I've been taking hydroxychloroquine over the same time. After the first round of pred. and off it for 3 days, I was stiff and in pain again. Today is 4th day of 20mg again, and feel okay--no pain, just muscle fatigue and feeling blah. The muscle fatigue feels like lactic acid buildup in thighs and arms after a hard bicycle ride or climb up several flights of stairs. So strange. Get tired after doing one "big thing" a day. That "big thing" could be doing several loads of laundry or running errands. I'm wondering if anyone ever really feels "normal" again?

@judy15 my symptoms were more significant in my legs. Bilaterally in the hips down to my knees. I had some stiffness in my arms but nothing debilitating like my legs. Never any issues with my neck. It’s so different for everyone.

@judy15
I started having troubles with my hips then shoulders. At the time seeing my Sports Medicine doctor we did PRP in both shoulders ( one at a time). The shoulders felt better afterwards but then I had an arthroscopic knees surgery and my recovery started out ok but then about at 10 weeks everything took a turn. Knees, hips, shoulders all crippling pain. Finally my PCP did more testing and PMR was the outcome. Sorry for such a long response but mine seemed to hit all major joints.

@judy15
I started at 15 over a year ago. I made it down to 3 and then 2 and tried to go to one. Disaster.
I am back at 2 and thinking I might have to go to 2.5 or 3 for a short time longer. My hands/wrists have become very stiff and sore.
I do ride my stationary bike daily and walk daily about a mile. But in the mornings I feel stiff in my legs. My shoulders are what got me on prednisone and I sincerely wish I had never started!!! It is hell coming off.