Hello OLP community,
I went to a Naturopathic physician last week who is recommending Low Dose Naltrexone (LDN) for OLP. He would like me to trial it for 6 months. Does anyone here have experience with LDN?
FYI, he is recommending a high intake of protein to promote healing of my mouth. For me, that equates to 107Gm of protein per day. Not easy! I'm going to a lab in a few days to have a boatload of tests per the Naturopath.
My Dermatologist said, "You need to find out what you are allergic to." OK. Working on it.
As a follow up to my previous posts, the Dexamethasone steroid rinse burned my mouth, but the water mixed with salt and baking soda is really soothing and calms things down well. Coconut oil pulling seemed to make my mouth worse. I do use Fluocinonide gel once in awhile when the sores in my mouth flare. The Desonide gel to my lip caused a major flare after I used it for several months. Just Aquafor now. Aquafor is my best friend...I don't go anywhere without it!
I am continuing with Cleure toothpaste, unflavored Closys ultra sensitive mouth rinse, Aquafor 24/7 to my lips. Avoiding ALL spices and chemicals. My food intake is very simple (but boring)...nothing processed. All fresh and mostly organic when possible. I did a ChatGPT search for best products to use in the shower...Vanicream shampoo, conditioner, soap. Lips don't burn anymore when I get out of the shower.
I'm also doing the best I can to not be over busy and over rushed. I have a follow up with the University Oral Med specialist next week. I'm thinking they might want to throw more meds at my mouth. I'm thinking, pay more attention to the triggers and improving overall health in general. We'll see.
With all of the above, I am pretty comfortable.
Hope you are all doing well or better. Anymore words of wisdom to share with the group are helpful.
Take care!