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← Return to Oncology Care Rejection
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@jeffmarc Completely agree with your assessment and am pursuing further to get to the bottom of it. I, unfortunately, am on Lupron for at least 3 more months and am having sever side effects of Dizziness and Nausea. Can not 100% say it is the Lupron but I have received a lot of additional tests and scans that point to it. Even trying PT now. I talked to my Urologist and will be getting on Orgovyx in July. Just reading about the decipher test it is typically for patients with localized cancer I have it in at least 4 locations currently. Received Radiation also at Mayo which makes this whole thing very confusing.
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@greg2026 I agree with Jeff that this doesn't make sense. If you were a Mayo oncology patient, the retirement of the doctor you had been seeing shouldn't have required you to seek oncologist treatment elsewhere. I hope that Colleen will post the contact information for the Mayo department that can help you register your unhappiness and get to the bottom of it. I am very sorry that you are going through this.
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@greg2026
You’re right the decipher test may not make much difference. Between the Gleason, nine and the metastasis, the likelihood of reoccurrence is very high already.