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@jeffmarc I live in Minnesota. Gleason 9. PSA 4.39. No mention regarding long term remission or what that even is metastasized to 4 locations including bone. On Lupron shot and DAROLUTAMIDE. Have not heard of a decipher test.
Replies to "@jeffmarc I live in Minnesota. Gleason 9. PSA 4.39. No mention regarding long term remission or..."
@greg2026 So your cancer qualifies as oligometastatic (good), and you're getting doublet therapy (better).
Have they discussed the possibility of metastasis-directed therapy (MDT) instead of chemo, since you have fewer than 5 metastases? Obviously, I don't know your exact situation (and I'm not a medical professional anyway).
Treatments like doublet therapy, triplet therapy, and MDT used to be cutting edge 4–5 years ago, but you should be able to get them at any major cancer facility that's a research centre and/or affiliated with a medical school these days — at least, I'd hope so.
The other increasingly-common approach these days for oligometastatic prostate cancer is to radiate your prostate (aka the "mothership"), even though the cancer has already spread. It's not indicated if there are >5 metastases, however. Another question to ask your medical team.
Best of luck!
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@greg2026
Here is one more place you can go, Recommended by the National Cancer Institute
Masonic Cancer
Centerr
University of
Minnesota
Minneapolis,
Minnesota
Comprehensive
Cancer Cent
It is really hard to understand how Mayo at Rochester is unable to help you any further. The fact that your oncologist retired is irrelevant. You should try to contact Dr. Heath, she is the head of oncology and is a really great doctor to work with. I know a few people that are working with her and they really like her a lot. Something very fishy about what they’re telling you. You live in Minnesota and there’s no reason you shouldn’t be able to get treatment there.
The Mayo Clinic knows about the decipher test. They can arrange to have you get one.
You are on a good set of drugs, though you might want to ask about changing The Lupron shot for the Orgovyx Pill which you take once a day. When you stop taking your testosterone comes back much quicker. A lot of people say they get Fewer side effects from it. Speak to your doctor about this. How are they planning on you getting Lupron shots in the future? Something very fishy about this whole thing.