My husband was diagnosed in 2004 with SCC, stage 4 with a 20% prognosis.

My two suggestions:

1). Go to MD Anderson and map out a very good plan of care. They have so many resources there.
2). We fly from San Diego to West Orange New Jersey every 3 months for my husband's severe radiation fibrosis - as it's been 21 years since diagnosis. We HIGHLY recommend Dr. Stubblefield at Kessler Rehab . He is considered a leading expert on radiation fibrosis. He informed us that traditional PT was only making things worse. His PT, OT and Speech are specific trained in the treatment of radiation fibrosis and is able to relieve my husband's pain.
3). Look up articles on the NIH regarding treatment for radiation fibrosis - that's how we found Dr. Stubblefield in New Jersey.
4). Look up Cancer Rehab PT on you tube - PT has some great gently exercises - make sure to seek advise from MD first before starting any exercises.
5). Exercise now, get a great myofascial therapist - put in as much time to treat yourself now so that in 20 year you will be thankful that you did.
OK...that was more than 2 things but.....