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Pancreatic Disorders Group: Introduce yourself and connect with others
Pancreatic Disorders | Last Active: Jun 30 11:20am | Replies (111)Comment receiving replies
@lee118424 Welcome to Connect. I can certainly understand your indecision at this point. Becoming insulin dependent is a major life change. I have had IPMNs for a number of years and have MRIs to evaluate growth or changes. My age is about the same as yours and it is a difficult decision to make.
I'm rather interested in your comment about "pancreatic sequencing." I'm not familiar with that procedure. Could you explain a bit more about what that reveals?
I see that you have a surgical consult scheduled on 5/8 in Pittsburgh. Have you already had a phone consultation in which you were informed that this IPMN could be removed laparoscopically?
Replies to "@lee118424 Welcome to Connect. I can certainly understand your indecision at this point. Becoming insulin dependent..."
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@hopeful33250
Pancreatic sequencing is a molecular analysts done at UPMC (gurus for this and sent there by my University of Michigan GI Dr.) My younger brother just had a bile duct obstruction and they incidentally found a tumor on his pancreas head. He had genetic testing done and there are no genetic markers. But since my brother has this they upgraded my “moderate” rating to “high risk”.
I found this on pancreatic sequencing: “Pancreatic sequencing in IPMN usually means molecular testing of cyst fluid or resected tissue to look for mutations such as KRAS and GNAS, sometimes with added genes to better identify high-risk or malignant cysts. In IPMN, sequencing can help distinguish benign-appearing cysts from lesions more likely to progress, and it can also clarify whether a later lesion in the remnant pancreas is a recurrence, spread, or a separate new neoplasm.”
UPMC is where physicians from all over the country send tissue to for analysis. And yes…I have been speaking with the UPMC physician who did my brother's Whipple procedure robotically there.