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Profile picture for lee118424 @lee118424

In February 2023 I experienced an episode of vertigo which resulted in a fall. MRI revealed 4 fx ribs and an incidental finding of several cysts…on pancreas, kidneys and ovaries. MRCP has been done every 6 months and the last one revealed some growth of one of the pancreatic IPMNs. University of Michigan surgeon recommends a total pancreatectomy (can’t be done robotically) which would result in my becoming an insulin dependent diabetic (insulin pump needed) to prevent the “possibility” of the IPMN turning into cancer. Pancreatic sequencing was done on the 5 IPMNs biopsied. Only 1 was considered mod-high risk (distal). I am going for a surgical consult to UPMC (Pittsburgh) on 5/8/26–they recommend removing only the IPMN that has increased in size and can do this surgery robotically. I am struggling. I feel great. No issues. I just want to forget I even have this predicament and just live my life. I’m 75 and understand that I’m not going to live forever…debating with myself if I should even do anything at this point and just let life take its course…

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Replies to "In February 2023 I experienced an episode of vertigo which resulted in a fall. MRI revealed..."

@lee118424 Welcome to Connect. I can certainly understand your indecision at this point. Becoming insulin dependent is a major life change. I have had IPMNs for a number of years and have MRIs to evaluate growth or changes. My age is about the same as yours and it is a difficult decision to make.

I'm rather interested in your comment about "pancreatic sequencing." I'm not familiar with that procedure. Could you explain a bit more about what that reveals?

I see that you have a surgical consult scheduled on 5/8 in Pittsburgh. Have you already had a phone consultation in which you were informed that this IPMN could be removed laparoscopically?