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Anyone else have multiple autoimmune diseases?

Autoimmune Diseases | Last Active: 3 days ago | Replies (147)

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Profile picture for Becky, Volunteer Mentor @becsbuddy

I really owe everyone on the discussion group a giant thank you. Thank you for having positive attitudes throughout your good days and bad ones. I really needed to hear you joke and say, “life is good! What are a few more AI diseases!” I’m going to set a new goal for myself: to work on my attitude every day! Becky

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@becsbuddy
I have a very hard time being positive. I've got sjögren's syndrome, Sleraderma, Raynouds,skin cancer thats always being treated somewhere on my face and head. I've so many symptoms that are always so busy on me. Pain is number 1, I've Fibromyalgia too. I am being treated for Cancer now in three places. 2 places in my left lung and it was deflated totally and full of cancerous fluid. They just removed the fluid off my lung and its starting to inflate again. Coughing terribly and getting sick. I'm weak and I am miserable 😭. It's what I want to do a lot , but I don't. I try to keep postive as they start chemo and radiation next week. I have pain in my left jaw to my ear from sjögren's. It's the salivate glands that are inflamed in there. I pray that stops soon! My other place of cancer is in my pelvic area in the middle of a lot of blood vessels and they can't operate on either of my cancer masses. They can only kill them. I'll be having chemo for a long time along with maintenance I'm sure. I've had 22 operations already and really don't want anymore ! Having Connective Tissue Disease can cause cancer 4x higher risk than another. I've had many blood vessels break in my brain and cause ischemic strokes in my hemispheres. I take meds like I have a heart issue. No high BP and my heart is fine so far. They can't stop them really. I have been lucky to not have had any in a year now though. I have a Neurologist and Ruymatolgist at John Hopkins I live about about 2.5 hours away from them , so not bad drive. They are the best around. I also have an oncologist there, but doing treatment for cancer where I live with his instructions being done. You take care!!!

@becsbuddy My spirit just crashed today but just as quickly came back up as I read all the positive comments! And I’ll keep on working. I went to a balance class today and then walked for 1.5 miles. I’ll just plan to keep it up!